Smile in the face of Adversity

I was always slower, weaker and less physically developed than my peers. The doctors kept telling my parents that I would begin to catch up soon and that nothing was wrong but this wasn't the case. At the age of 8, I had a muscle biopsy, where we received the devastating news that I had Ullrich Congenital Muscular Dystrophy. The prognosis? I'd need a wheelchair within the next few years, I'd be on a ventilator by 14 and I'd be lucky to make it past 20.​

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From that point forward... Team Jed was born

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Friends, family and groups of individuals from all over came together to raise money for Team Jed - a fund dedicated solely to raising money for research into Muscular Dystrophy. As a collective, we have raised over £250,000 and don't plan on stopping until those after us can live a life without physical limitations.